UPDATE
Jessica and Justin Reddy and their family have spent over a month at the NICU at Strong Hospital since Maylynn Joanne Reddy came into the world on June 20, 2018.
Doctors told Jessica and Justin that Maylynn would not make it to birth.
Today, the couple and their three girls, Maycee, 5, Madalynn, 4, and Maylynn, a little over a month, arrived back home this afternoon.
“We are bringing Maylyn home today with hospice,” says Jessica.
“We are just going to spend time with her as a family and we are keeping her as stable and as comfortable as we can, we want her to enjoy her time, whether it be a day, a week, a month or a year.”
At 36 weeks pregnant, Jessica Reddy and her husband Justin found out that baby Maylynn had fluid in her brain and holoprosencephaly, a disorder where the forebrain of the embryo fails to develop into two hemispheres, this can cause defects in the development of the face and in the brain structure and function. As a result, Maylynn also has a cleft lip and pallet, however they did not know the severity until she was born.
Jessica says doctors performed surgery a few weeks ago to install a G-tube, that was inserted through the abdomen, it enables nutrition to be directly delivered to the stomach. Jessica will also be able to give Maylynn her medication through the tube. This procedure enabled the family to come home today.